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Table 2 Social support of sample including N = 304 Patients with rare diseases

From: Supportive care needs of patients with rare chronic diseases: multi-method, cross-sectional study

Variable

Absolute frequency

Percentage (95% CI)

Do you feel that you have sufficient social support?

Yes

122

40.1 (34.6, 45.6)

 

No

182

59.9 (54.4, 65.4)

With whom do you have supporting conversations on a regular basis?

   

Nobody

Yes

69

22.7 (18.0, 27.4)

 

No

235

77.3 (72.6, 82.0)

General practitioner

Yes

31

10.2 (6.8, 13.6)

 

No

273

89.8 (86.4, 93.2)

Specialist physician

Yes

27

8.9 (5.7, 12.1)

 

No

277

91.1 (87.9, 94.3)

Psychotherapist

Yes

51

16.8 (12.6, 21.0)

 

No

253

83.2 (79.0, 87.4)

Self-help group

Yes

55

18.1 (13.8, 22.4)

 

No

249

81.9 (77.6, 86.2)

Pastor

Yes

6

2.0 (0.4, 3.6)

 

No

298

98.0 (96.4, 99.6)

Partner

Yes

107

35.2 (29.8, 40.6)

 

No

197

64.8 (59.4, 70.2)

Family member

Yes

97

31.9 (26.7, 37.1)

 

No

207

68.1 (62.9, 73.3)