From: Supportive care needs of patients with rare chronic diseases: multi-method, cross-sectional study
Variable | Absolute frequency | Percentage (95% CI) | |
---|---|---|---|
Do you feel that you have sufficient social support? | Yes | 122 | 40.1 (34.6, 45.6) |
No | 182 | 59.9 (54.4, 65.4) | |
With whom do you have supporting conversations on a regular basis? | |||
Nobody | Yes | 69 | 22.7 (18.0, 27.4) |
No | 235 | 77.3 (72.6, 82.0) | |
General practitioner | Yes | 31 | 10.2 (6.8, 13.6) |
No | 273 | 89.8 (86.4, 93.2) | |
Specialist physician | Yes | 27 | 8.9 (5.7, 12.1) |
No | 277 | 91.1 (87.9, 94.3) | |
Psychotherapist | Yes | 51 | 16.8 (12.6, 21.0) |
No | 253 | 83.2 (79.0, 87.4) | |
Self-help group | Yes | 55 | 18.1 (13.8, 22.4) |
No | 249 | 81.9 (77.6, 86.2) | |
Pastor | Yes | 6 | 2.0 (0.4, 3.6) |
No | 298 | 98.0 (96.4, 99.6) | |
Partner | Yes | 107 | 35.2 (29.8, 40.6) |
No | 197 | 64.8 (59.4, 70.2) | |
Family member | Yes | 97 | 31.9 (26.7, 37.1) |
No | 207 | 68.1 (62.9, 73.3) |