From: Supporting sexuality for people living with epidermolysis bullosa: clinical practice guidelines
Domains and outcomes | Number of articles allocated | Total participants with EB | Gender Numbersλ | Age in years Range | Study type | References |
---|---|---|---|---|---|---|
Domain addressing Mechanical factors impacting sexuality | ||||||
(A) Mechanical factors: a. across lifespan b. systemic and physical function c. sexual involvement d. self-exploration e. sexual experiences f. sexual knowledge | 13 | 3460 EBα 1688 EBS 457 RDEB 425 DDEB 236 JEB 50 DEB | 27 Male 41 Female | 1 to 86 | 3 Systematic literature review 3 Qualitative 2 Symposium report 1 Retrospective study 1 Quantitative 1 Book chapter 1 Registry 1 Case reports | [8, 9, 11, 17, 22,23,24,25,26,27,28,29,30] [22]β |
(B) Intervention for mechanical factors affecting sexuality such as: a. condition-specific b. sexual/pubertal c. self-exploration d. medical interventions e. sexual knowledge f. family planning | 15 | 4152* 3692 EBα 1685 EBS 457 RDEB 425 DDEB 236 JEB 50 DEB | 27 Male 41 Female | 1 to 86 | 3 Systematic literature review 4 Qualitative 2 Symposium report 1 Retrospective study 1 Quantitative 1 Book chapter 1 Validation study 1 Registry 1 Case reports |