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Table 1 The demographics characteristics of SMA patients (n = 101)

From: Quality of life of children with spinal muscular atrophy and their caregivers from the perspective of caregivers: a Chinese cross-sectional study

Variable N (%)
Child sex  
 Male 49 (48.50)
 Female 52 (51.50)
Child primary diagnosis  
 SMA type I 26 (25.70)
SMA type II 56 (55.40)
 SMA type III 19 (18.80)
Average age of SMA type (years) Age range of SMA type (years)
 SMA type I: 5.28 0.50–16.17
 SMA type II: 6.90 0.92–16.00
 SMA type III: 9.35 2.08–13.67
Disease duration Age range of disease duration (years)
 SMA type I 4.86 (0.33–15.58)
 SMA type II 6.12 (0.17–15.50)
 SMA type III 5.9 (1.00–13.67)
Mobility  
 Non-sitter 46 (45.50)
 Sitter 39 (38.60)
 Walker 16 (15.80)
Stable course of disease  
 No 41 (40.60)
 Yes 60 (59.40)
Skeletal deformity  
 No 27 (26.70)
 Yes 74 (73.30)
Digestive system dysfunction  
 No 78 (77.20)
 Yes 23 (22.80)
Medical services  
 N-MS 67 (66.30)
 MS but not U-MDT 21 (20.80)
 U-MDT 13 (12.90)
Exercise training  
 No 56 (55.40)
 Yes 45 (44.60)
Respiratory support  
 No 75 (74.30)
 Yes 26 (25.70)
Nutritional support  
 No 82 (81.20)
 Yes 19 (18.80)
Scoliosis surgery  
 No 99 (98.00)
 Yes 2 (2.00)
Nusinersen treatment  
 No 92 (91.10)
 Yes 9 (8.90)
  1. SMA spinal muscular atrophy, N-MS no medical services, MS but not, U-MDT medical services but not under multidisciplinary team, U-MDT Under multidisciplinary team