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Table 1 Studies featuring the prevalence and mortality of TSC in the previous 15 years

From: Prevalence, mortality and healthcare economic burden of tuberous sclerosis in Hong Kong: a population-based retrospective cohort study (1995–2018)

Area

(year of publication)

Prevalence

(per 100,000)

Mortality

Case number

Northern Ireland (2006) [21]

1: 24,956 (4.00)

in 2004

N/A

73 patients

Taiwan (2009) [22]

1: 95,136 (1.05)

in 2006

N/A

208 patients

Quebec, Canada (2015) [23]

1: 7872 (12.7) in 2011

N/A

1004 patients

Taiwan (2016) [24]

1: 2,500,000 (0.04)

in 1997 &

1: 63,291 (1.58)

in 2010

N/A

471 patients

Sweden (2017) [25]

1:18,577 (5.38) in 2013

N/A

551 patients

Bath TSC Clinic, UK (2017) [12]

N/A

median age of death was 33 years (IQR 26–46)

284 patients