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Table 7 Impact on the family of a late onset GM2 patient

From: A feasibility study of mHealth and wearable technology in late onset GM2 gangliosidosis (Tay-Sachs and Sandhoff Disease)

Impact on the family of a late onset GM2 patient
Question Possible Answer Numerical value Converted Value (For composite scale)
I don’t have much time left over for other family members after caring for myself Strongly Agree 3 1
Agree 2 0.667
Disagree 1 0.333
Strongly Disagree 0 0
Our family gives up things because of my illness Strongly Agree 3 1
Agree 2 0.667
Disagree 1 0.333
Strongly Disagree 0 0
I worry about what will happen in the future Strongly Agree 3 1
Agree 2 0.667
Disagree 1 0.333
Strongly Disagree 0 0
Because of what we have shared we are a closer family Strongly Agree 0 0
Agree 1 0.333
Disagree 2 0.667
Strongly Disagree 3 1
Total Score 12