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Table 1 SCDIC Registry timeline

From: Publication of data collection forms from NHLBI funded sickle cell disease implementation consortium (SCDIC) registry

  Phase I Phase II
Year 1 Year 2 Year 3 Years 4–6
Q1 Q2 Q3 Q4 Q1 Q2 Q3 Q4 Q1 Q2   Q3 Q4 Y4 Y5 Y6
Finalize core measures   X          ADMINISTRATIVE REVIEW      
Develop procedures   X X             
Design data forms   X X             
Protocol development    X X            
Secure IRB approvals     X X           
Develop data systems     X X           
Manual of operations     X X           
Train coordinators      X           
Recruitment and follow-up      X X X X X X X X X X X
Monitoring       X X X X X X X X X X
Data analysis and publication            X X X X X