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Table 2 List of work packages and their corresponding leading centre in the EUROMAC consortium

From: Creation and implementation of a European registry for patients with McArdle disease and other muscle glycogenoses (EUROMAC registry)

 

Leading Centre

Horizontal Work Packages

 WP1

Coordination

VHIR

 WP2

Dissemination

AGSD-UK

 WP3

Evaluation

MEDEA

Core Work Packages

 WP4

Methodology and registering activity

SERMAS

 WP5

Quality assessment and management

UTH

 WP6

Data analysis

RIGUC

 WP7

Training and education

UCL-MRC

 WP8

Ethical and legal issues

APHP