Table 7 PROMs: concepts measured in each category
MEASURED QUANTITY: PROM frequency | HRQOL | Symptoms | Psychological and cognitive functioning | Physical functioning | Other |
|---|---|---|---|---|---|
Generic | 9 | 4 | 3 | 6 | 12 |
Non-rare disease specific | 10 | 11 | 10 | 5 | 2 |
Rare disease specific | 16 | 7 | 2 | 4 | 7 |
Study-specific | 1 | 9 | 0 | 0 | 5 |
Total | 36 | 31 | 15 | 15 | 16 |