Fig. 1

Current screening practices across the eight VASCERN HHT Centres. Proportions of the cohorts where screening is discussed and performed. 4 colour codes represent 4 broad percentage ranges: Black 90–100%; dark grey 50–90% (adult columns 1 and 2); mid grey 10–50%, light grey < 10%. a in addition to population-wide, country specific antenatal screening programmes. b Pregnancies are an indication for antenatal screening and transfontanellar Doppler US in perinatal period; MR is discussed on the basis of familial history. c as per protocol in [20]. d In any setting, discuss first, and have an open door policy for imaging if things change. Aiming too for prenatal scan support. Under 3 months, as no general anaesthetic required for MR, use “feed and wrap”