Fig. 1
From: Critical clinical situations in adult patients with Mucopolysaccharidoses (MPS)
Key members of the MDT for patients with MPS. The MDT for patients with MPS consists of several HCPs. The main role of a tertiary adult metabolic centre is to coordinate the referral pathway to other specialists, arrange MDT meetings and follow up patients with MPS after procedures. In the UK model of care, a metabolic specialist coordinates referrals to other specialists and/or arranges preoperative assessments. Patients with MPS remain primarily under the care of a metabolic team, which works closely with the other specialists to provide the best possible care. The central coordinating position may be filled by any specialty with the skills required to manage the patient’s care plan among the other specialties involve