Skip to main content

Table 2 Demographics of caregiver focus group participants

From: Patient and caregiver perspectives on burden of disease manifestations in late-onset Tay-Sachs and Sandhoff diseases

 Late-onset GM2 gangliosidosis caregivers (n = 7)
Age• 40–59 years: 43%
• 60+ years: 57%
Employment• Employed (full or part time): 71%
• Retired: 29%
GM2 disease variant of patient• Late-onset Tay-Sachs disease: 71%
• Late-onset Sandhoff disease: 29%
Current living situation• Living with and caring for spouse patient: 57%
• Living with and caring for adult child patient: 29%
• Living separately; visits sibling to assist with care: 14%
Median time since beginning caregiving• 12 years (range 1–37 years)