Table 2 Demographics of caregiver focus group participants
Late-onset GM2 gangliosidosis caregivers (n = 7) | |
|---|---|
Age | • 40–59 years: 43% • 60+ years: 57% |
Employment | • Employed (full or part time): 71% • Retired: 29% |
GM2 disease variant of patient | • Late-onset Tay-Sachs disease: 71% • Late-onset Sandhoff disease: 29% |
Current living situation | • Living with and caring for spouse patient: 57% • Living with and caring for adult child patient: 29% • Living separately; visits sibling to assist with care: 14% |
Median time since beginning caregiving | • 12 years (range 1–37 years) |