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Table 3 Likert questions about training for the management and knowledge of rare diseases.(Based in Esteban Bueno et al. 2015)

From: Education and information needs for physicians about rare diseases in Spain

QuestionsHospital
(n = 37)
Mean (SD)
Primary care
(n = 132)
Mean (SD)
p-value
I consider that the medical training (clinical aspects) that I have received on rare diseases is adequate2.29 (0.94)1.72 (0.96)0.001
I believe that the training I have received on the psychosocial impact of rare diseases is adequate1.77 (0,81)1.71 (0.93)0.730
I consider myself qualified to coordinate the health care of a patient with a rare disease2.40 (1.17)1.82 (1.02)0.002
I know the protocol of action that I must follow with a patient with a rare disease2.19 (1.12)1.58 (0.83)0.002
I feel qualified to give genetic counselling to my patients with rare diseases2.02 (1.01)1.41 (0,74)0.001
I know the existence of some of the registries of rare diseases existing in our country2.33 (1.29)2.10 (1.26)0.305
I have enough information about the operation of rare disease registries1.79 (0.99)1.58 (0.84)0.154
I know what the Reference Units for rare diseases are2.40 (1.22)1.97 (1.11)0.029
I know the role of these Reference Units in the monitoring of these diseases2.38 (1.29)1.87 (1.07)0.009
I know the existence of the State Reference Center for People with rare diseases and their families2.09 (1.23)1.87 (1.14)0.272
I know how to refer patients to Reference Units2.47 (1.32)1.53 (0.77)0.001
I know the functions performed by the State Reference Center for People with Rare Diseases and their Families1.95 (1.07)1.53 (0.78)0.019
I know the global / national organizations / associations working in the field of rare disease2.26 (1.09)1.58 (0.85)0.001
Overall28.16 (10.55)22.19 (8.77)0.001
  1. *Significant difference p < 0.05