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Table 5 Reliability assessment: Scoring differences between test and retest rounds: mean ratings (5-point scale)

From: Treatment needs and expectations for Fabry disease in France: development of a new Patient Needs Questionnaire

Calculated for each item (rating /5)

PNQ Fabry

WHOQOL-BREF

Minimal difference observed for one item

−0.15

−0.18

Maximal difference observed for one item

0.19

0.16

Sum of absolute values of differences observed in all items

0.34

0.34

Mean of absolute values

0.09

0.06

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172