Table 1 Step II: The first version of PNQ Fabry (58 items): as sent to participants. [Excerpt from the PNQ Fabry V1]
1 – Not at all Important | 2 – Slightly Important | 3 - Moderately Important | 4 - Important | 5 – Very Important | 6 – Does not apply to me | |
|---|---|---|---|---|---|---|
How important is it to you that the treatment enables... | ||||||
to be less depressed and restores your zest for life | □ | □ | □ | □ | □ | □ |
to feel good every day | □ | □ | □ | □ | □ | □ |
to continue to work | □ | □ | □ | □ | □ | □ |
not to fear the administration of your treatment | □ | □ | □ | □ | □ | □ |
to be able to spend time with your family | □ | □ | □ | □ | □ | □ |
to stop the evolution of Fabry disease | □ | □ | □ | □ | □ | □ |
not to cause excessive sweating | □ | □ | □ | □ | □ | □ |
to reduce pain in the feet | □ | □ | □ | □ | □ | □ |
to have less mood swings | □ | □ | □ | □ | □ | □ |
not to suffer from side effects or adverse events related to treatment | □ | □ | □ | □ | □ | □ |
… | □ | □ | □ | □ | □ | □ |
How important is it to you to have a treatment... | ||||||
that you can pick up at the pharmacy in your town | □ | □ | □ | □ | □ | □ |
… | □ | □ | □ | □ | □ | □ |