Table 1 Details of the OMPOs and the interviewees
Organization; URL; Type of organization; Year of establishmenta | Interviewee; Role of the interviewee in the organization | Category of work | Vision, mission and goalsb |
|---|---|---|---|
Aten Porus Lifesciences (APL) (http://www.atenporus.com/) Company; 2014 | Dr. Aditya Kulkarnic Founder and Chief Scientific Officer | Treatment: Drugs | Drug discovery for diseases with unmet medical needs in India. |
Dystrophy Annihilation Research Trust (DART) (https://dartindia.in/) Not–for–profit Trust; 2012 | Dr. Arun Shastryd Chief Scientific Officer | Treatment: Genomic interventions | Research for affordable therapies for muscular dystrophies. Helping families with diagnosis, counselling and management of the disease. |
Eyestem (https://www.eyestem.com/) Company; 2015 | Dr. Jogin Desaic Founder and Chief Executive Officer (CEO) | Treatment: Cell therapies | Cell therapy that is scalable and affordable. |
Genique Lifesciences (GLS) (https://www.genique.co/) Company; 2018 | Mr. Abhishek Dasc Founder and CEO | Diagnostics: Genomic-based diagnostics | To make genetic reporting easy-to-understand for clinicians and patients. |
Genes, Repair and Regeneration at Ophthalmic Workstation (GROW) (https://www.narayananethralaya.org/grow-research-lab/) Research laboratory based in a not-for-profit hospital; 2013 | Dr. Arkasubhra Ghoshd Director, GROW | R&D | Discovery research using patient tissue, targeted towards the following: understand the genetic basis of diseases; modelling of diseases to understand the function of genes in pathological processes; and development of gene therapies and clinical grade vector production for trials in humans. |
Genomics for Understanding Rare Diseases - India Alliance Network (GUaRDIAN) (http://guardian.meragenome.com/) Not–for–profit collaborative research program hosted by a government research institute; 2013 | Dr. Sridhar Sivasubbud Principal Scientist at CSIR IGIB & Co-founder of GUaRDIAN | R&D | The vision of GUaRDIAN is to establish a unique collaboration framework in healthcare planning, implementation, and translation in the specific area of rare genetic diseases. The program proposes to apply genomics for the systematic characterization and diagnosis of rare genetic diseases in India with the aim of developing affordable and accessible genomic-based diagnostics available to people with rare diseases. |
Indus Biotech (IB) (http://www.indusbiotech.com/) Company; 1998 | Mr. Sunil Bhaskarand Founder and Managing Director | Treatment: Drugs | To develop botanical drugs for RDs and seek approval from the USFDA, under the orphan drug category. |
MedGenome (https://www.medgenome.com/) Company; 2013 | Dr. V L Ramprasadd Chief Operating Officer and Lab Director | Diagnostics: Genomic-based diagnostics | Its vision is to enable precision medicine. Its mission is to provide comprehensive molecular testing solutions that helps make an informed decision for drug discovery and disease management. It is the market leader in genetic diagnostics in India and one of the highest throughput NGS sequencing labs in South Asia |
Pristine (https://pristineorganics.com/) Company; 2004 | Ms. Shruti Kumblad Senior Nutritionist | Management products: Nutritional products, IEM foods | To provide medically-appropriate nutritional food |
Redcliffe Life Sciences (RLS) (https://www.redcliffels.com/) Company; 2017 | Mr. Ashish Dubeyd Founder and CEO | Diagnostics: Genomic-based diagnostics | DNA based diagnostics for mother and child diseases |
Specialized Mobility Operations and Innovations (SMOI) (http://smoi.org/) Company; 2012 | Dr. Padmaja Kankipatid Director | Management products: mobility aids | Providing services related to customized wheeled mobility solutions based on the user’s physical, functional and environmental needs, and making world class technology accessible to patients through innovation. |
TerraBlue XT (TBXT) (https://www.teblux.com/) Company; 2016 | Ms. Rajlakshmic Borthakur Founder and CEO | Management products: wearable medical devices | To create Internet of Things (IoT)- and Artificial Intelligence (AI)- based solutions and wearable medical devices for neurological disorders. |
New Organizations | |||
 Center for Drug Discovery (CDD) (http://gne-myopathy.org) Not–for–profit Trust; (CDD was launched in 2019) | Dr. Sudha Bhattacharyad Founder | R&D | Mission is to collaborate with various research institutes across the country to fund research leading to the development of therapies for rare diseases, specifically GNE Myopathy |
 Genetico (Website under construction) Company; 2019 | Mr. Arjun Guptad Founder | Management products: Genetics and genomics based software technologies. | Genetico is a genetics and genomics company focused on discovery science and reducing time to diagnosis in the area of rare diseases. Our goal is to enable cost effective diagnostics and therapeutics in emerging countries. |