Fig. 3From: Analysis of the caregiver burden associated with Sanfilippo syndrome type B: panel recommendations based on qualitative and quantitative dataCaregiver Stress Cycle. As the patient ages, the level of burden remains high, but requirements of care change as the disease progresses. Parents and caregivers experience new stresses as they encounter different symptoms and behaviors. The stress cycle of caregiver burden repeats as caregivers readjust to the changing needs of the patient, which has a detrimental effect on the quality of life of the caregiverBack to article page