Table 8 From the list below, what are the three main pieces of information about the project that would be important for you to receive? (Please select three responses in priority order)
(n = 2013) | Number of people | % of responses |
|---|---|---|
Detail on how the project could be beneficial for your disease or other diseases | 1605 | 80% |
Brief summary of the key information necessary to understand the main aspects of the project | 1032 | 51% |
Information about the data management rules (ie. how access to my health information will be granted or is there an ethical review?) | 988 | 49% |
Information about professionals involved in the project who can access the health information (e.g. their biography) | 797 | 40% |
Information on how professionals involved in the project might benefit professionally from accessing my health information | 750 | 37% |
Information on the measures taken to prevent security breaches | 561 | 28% |
Don’t know | 64 | 3% |
I wouldn’t give the possibility of sharing these health information | 28 | 1% |
Other | 26 | 1% |