Table 2 Information About You
Information About You | |||||||
|---|---|---|---|---|---|---|---|
Self-reported Demographic | Frequency Ages 2–4 | % | Frequency Ages 5–18 | % | Frequency Age 19+ | % | Total N |
Male | 12/27 | 44.4% | 33/64 | 51.6% | 44/197 | 22.3% | 288 |
Race - White | 25/27 | 93.6% | 57/64 | 89.0% | 189/196 | 96.4% | 287 |
Diagnosis/Type confirmed by skin biopsy or DNA analysis | 17/27 | 63.0% | 29/64 | 45.3% | 32/168 | 19.0% | 259 |
Diagnosis based on clinical history and radiographs | 10/27 | 37.0% | 35/64 | 54.7% | 136/168 | 80.9% | 259 |
Family History of OI | 3/27 | 11.1% | 15/65 | 23.1% | 117/197 | 59.4% | 289 |
Walks unaided | 15/26 | 55.6% | 39/66 | 59.1% | 107/197 | 54.3% | 289 |
Uses manual or power wheelchair | 3/26 | 11.1% | 21/66 | 31.8% | 54/197 | 27.4% | 289 |
History of fractures at birth | 14/27 | 51.9% | 22/65 | 33.8% | 46/195 | 23.6% | 287 |
History of rodding surgery | 10/27 | 37.0% | 34/66 | 51.5% | 82/185 | 44.3% | 278 |
History of spine surgery | 0/27 | 0% | 6/66 | 9.1% | 31/194 | 16.0% | 287 |
History of recurrent breathing issues | 5/27 | 18.5% | 15/66 | 22.7% | 56/196 | 28.6% | 289 |
History of hearing loss | 0/27 | 0% | 8/66 | 12.1% | 73/197 | 37.1% | 290 |
Uses a hearing aid (if reported hearing) | NA | NA | 1/8 | 12.5% | 46/101 | 45.5% | 109 |
History of Pregnancy (women only) | 0/15 | 0% | 0/31 | 0% | 79/151 | 46.7% | 197 |
History of Treatment for Anxiety | 1/27 | 3.7% | 7/64 | 10.9% | 58/190 | 30.5% | 281 |
History of Treatment for Depression | 0/27 | 0% | 3/64 | 4.7% | 59/189 | 31.2% | 280 |
History of Treatment for Fatigue | 1/27 | 3.7% | 2/60 | 3.3% | 21/181 | 11.6% | 268 |
History of Treatment for Pain | 11/27 | 40.7% | 33/64 | 51.6% | 117/191 | 61.3% | 282 |
History of Treatment for Sleep-Related issues | 3/27 | 11.1% | 8/61 | 13.1% | 57/183 | 31.1% | 271 |