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Table 3 Number of patients with undiagnosed diseases in Japanese general hospitals and family clinics who would be referred to IRUD

From: Survey on patients with undiagnosed diseases in Japan: potential patient numbers benefiting from Japan’s initiative on rare and undiagnosed diseases (IRUD)

Survey-1 Pediatrics/pediatric surgery Other departments
General hospitals (GH) Family clinics (FC) General hospitals (GH) Family clinics (FC)
Percentage of doctors needing IRUD 36.8% (35/95) 32.9% (25/76) 19.4% (65/335) 18.2% (52/286)
 Number of participating doctors (persons) 95 76 335 286
 Number of doctors completed the survey (persons) 45 36 87 74
 Number of doctors needing IRUD (persons) 35 25 65 52
Number of patients who would be referred to IRUD per doctor needing IRUD (cases/person) 0.3 0.1 0.6 0.1
Total number of doctors in the relevant facilities in Japan (persons) 9192 6677 155,907 95,207
Number of patients with undiagnosed diseases in Japan who would be referred to IRUD (cases) 1063 264 18,133 2337
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