Fig. 1 (abstract P20).
From: 9th European Conference on Rare Diseases & Orphan Products (ECRD Vienna 2018)
Example of a knowledge map developed by ‘Expertise Mapped’ to visualise the organisation of care for RD. The knowledge map shows the patients’ perspective on health care (gathered from an online survey, orange part) and the organisation of care in the CE (gathered from interviews with the experts by a panel of patients, green part)