From: Health-related quality of life in children with PFAPA syndrome
Scale | PFAPA patients | FMF controls | P | ||
---|---|---|---|---|---|
Number | Mean score | Number | Mean score | ||
Total | 33 | 66.5 | 27 | 80.3 | < 0.01 |
Pre-school age children (2/5–7 years) | |||||
Self-reported | |||||
Total fatigue score | 15 | 60.4 | 8 | 78.3 | 0.01 |
General fatigue | 15 | 70 | 8 | 84.4 | 0.02 |
Sleep/rest fatigue | 73 | 50.5 | 0.02 | ||
Cognitive fatigue | 81.4 | 61.1 | 0.01 | ||
Proxy-reported | |||||
Total Fatigue score | 23 | 69.3 | 14 | 74.9 | 0.27 |
General fatigue | 23 | 65.8 | 14 | 73.3 | 0.2 |
Sleep/rest fatigue | 23 | 65.9 | 14 | 74.5 | 0.25 |
Cognitive fatigue | 23 | 76.3 | 14 | 80.8 | 0.33 |
School age children and youth (8–18 years) | |||||
Self-reported | |||||
Total Fatigue score | 8 | 62 | 13 | 77.5 | 0.04 |
General fatigue | 8 | 61.9 | 13 | 77.8 | 0.06 |
Sleep/rest fatigue | 8 | 66.4 | 13 | 76.5 | 0.09 |
Cognitive fatigue | 8 | 57.8 | 13 | 77.8 | 0.07 |
Proxy-reported | |||||
Total Fatigue score | 10 | 64.1 | 13 | 76.6 | 0.13 |
General fatigue | 10 | 61.5 | 13 | 73.1 | 0.16 |
Sleep/rest fatigue | 10 | 66.6 | 13 | 74.3 | 0.09 |
Cognitive fatigue | 10 | 64.6 | 13 | 82.1 | 0.07 |