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Table 3 Average annual costs per patient (€, 2014)

From: Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

Resource

Mean (SD)

% Category of cost

% Total Cost

Drugs

83 (262)

0.76%

0,25%

Medical tests

603 (721)

5.54%

1,79%

Medical visits

7732 (11,211)

71.05%

22,93%

Hospitalizations

1297 (5856)

11.92%

3,85%

GP & Emergency

244 (956)

2.24%

0,72%

Health material

920 (1183)

8.45%

2,73%

Healthcare transport

3 (13.48)

0.03%

0,01%

Direct healthcare costs

10,882 (14,974)

100.00%

32,27%

Social services

746 (2511)

3.27%

2,21%

Direct non-healthcare formal costs

746 (2511)

3.27%

2,21%

Main informal career

11,508 (19,855)

54.47%

34,13%

Other informal careers

9619 (18,666)

45.53%

28,52%

Direct non-healthcare informal costs

21,127 (30,253)

92.50%

62,65%

Other non-healthcare family costs a

966 (1240)

4.23%

2,86%

Direct non-healthcare costs

22,839 (31,340)

100.00%

67,73%

TOTAL COST

33,721 (38,700)

100.00%

100,00%

  1. a Contains costs attributed to non-health transport paid by the family, as well as costs associated with housing adaptation and vehicle adaptation