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Table 3 Average annual costs per patient (€, 2014)

From: Social/economic costs and health-related quality of life in patients with spinal muscular atrophy (SMA) in Spain

Resource Mean (SD) % Category of cost % Total Cost
Drugs 83 (262) 0.76% 0,25%
Medical tests 603 (721) 5.54% 1,79%
Medical visits 7732 (11,211) 71.05% 22,93%
Hospitalizations 1297 (5856) 11.92% 3,85%
GP & Emergency 244 (956) 2.24% 0,72%
Health material 920 (1183) 8.45% 2,73%
Healthcare transport 3 (13.48) 0.03% 0,01%
Direct healthcare costs 10,882 (14,974) 100.00% 32,27%
Social services 746 (2511) 3.27% 2,21%
Direct non-healthcare formal costs 746 (2511) 3.27% 2,21%
Main informal career 11,508 (19,855) 54.47% 34,13%
Other informal careers 9619 (18,666) 45.53% 28,52%
Direct non-healthcare informal costs 21,127 (30,253) 92.50% 62,65%
Other non-healthcare family costs a 966 (1240) 4.23% 2,86%
Direct non-healthcare costs 22,839 (31,340) 100.00% 67,73%
TOTAL COST 33,721 (38,700) 100.00% 100,00%
  1. a Contains costs attributed to non-health transport paid by the family, as well as costs associated with housing adaptation and vehicle adaptation