Table 1 Demographic characteristic of the study participants (N = 81 patient-caregiver pairs)
n (%) | |
|---|---|
No. of Patients (%) | 81 (100) |
Type I | 8 (9.87) |
Type II | 60 (74.07) |
Type III | 13 (16.06) |
Gender | |
Female | 47 (58.02) |
Male | 34 (41.98) |
Age (mean) | 7.22 (5.47)a |
Age from the first symptom, mean (SD) | 4.32 (2.50) |
Type I | 1.55 (1.06) |
Type II | 4.26 (2.35) |
Type III | 5.35 (2.79) |
Education | |
Educated at an ordinary school | 21 (25.93) |
Educated at an ordinary center with special sessions | 39 (48.15) |
Educated at a special needs education center | 3 (3.70) |
Home schooled | 5 (6.17) |
Nursery school | 0.00 |
Not received education | 10 (12.35) |
Missing | 3 (3.70) |
Caregivers | |
No. of caregivers (N) | 81 (100) |
Gender | |
Male | 7 (8.64) |
Female | 36 (44.44) |
Missing | 38 (46.92) |
Age | 40.29 (7.30)a |
Working situation | |
Employed | 25 (30.87) |
Retired or pensioner | 0 |
Housewife/house husband | 16 (19.75) |
Missing | 40 (49.38) |
Caregiving time (daily hours) | 4.05b (8.22)c |
Barthel Index, median | 39.1 (22.50)a |
Zarit-caregiver burden, median | 34.53 (13.41)a |