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Table 3 Supply of care: Nature of consultation and reference of patients for other French regions and Paris Region

From: Management of rare diseases of the Head, Neck and Teeth: results of a French population-based prospective 8-year study

Characteristics

French Regions, n = 4048

Paris Region, n = 7294

Consultations, n=

13,445

36,039

 Follow-up

7463 (55.5)

20,560 (71.8)

 Global care

4164 (31.0)

9691 (33.9)

 Diagnosis

849 (6.3)

3553 (12.4)

 Medical act

838 (6.2)

1647 (5.7)

 Emergency

39 (0.3)

459 (1.6)

 Prenatal Diagnosis

82 (0.6)

73 (0.2)

 Protocol

10 (0.1)

56 (0.2)

Reference centres, n

2

4

Competence centres, n

34

0

Patients referred by, n=

 Pediatrician

1849 (45,6)

2986 (40.9)

 Other specialist

843 (20.8)

2381 (32.6)

 Himself/herself or parents

323 (7.9)

798 (10.9)

 Other/unknown

604 (14.9)

748 (10.3)

 General practitioner

184 (4.5)

171 (2.3)

 Pluridisciplinary prenatal centre

109 (2.7)

99 (1.4)

 Association

62 (1.5)

31 (0.4)

 Treatment centre

12 (0.3)

48 (0.7)

 Geneticist

22 (0.5)

29 (0.4)

 Neonatal diagnosis centre

39 (1.0)

1 (0.1)

 Mother and child medical centre

1 (0.0)

27 (0.4)