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Table 4 Results of capture-recapture analysis to estimate the total number of true cases using only passive data

From: Capture-recapture methodology to study rare conditions using surveillance data for fragile X syndrome and muscular dystrophy

Muscular Dystrophy
 Population Cases in Passive Dataset Additional Cases Estimated by Capture-Recapture Total Estimated Cases from Passive Data Total Cases Observed in Active Data
Cases with at least one in-patient ICD-9-CM code or at least two outpatient ICD-9-CM codes given in a facility in target counties where at least one of the diagnoses was made by a neurologist, geneticist, or developmental pediatrician 375 40 415 384
Fragile X Syndrome
 Population Cases in Passive Dataset Additional Cases Estimated 2by Capture-Recapture Total Estimated Cases from Passive Data Total Cases Observed in Active Data
Cases with at least one in-patient ICD-9-CM code or at least two outpatient ICD-9-CM codes given in a facility in target counties 134 6 140 141