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Table 4 Results of capture-recapture analysis to estimate the total number of true cases using only passive data

From: Capture-recapture methodology to study rare conditions using surveillance data for fragile X syndrome and muscular dystrophy

Muscular Dystrophy

 Population

Cases in Passive Dataset

Additional Cases Estimated by Capture-Recapture

Total Estimated Cases from Passive Data

Total Cases Observed in Active Data

Cases with at least one in-patient ICD-9-CM code or at least two outpatient ICD-9-CM codes given in a facility in target counties where at least one of the diagnoses was made by a neurologist, geneticist, or developmental pediatrician

375

40

415

384

Fragile X Syndrome

 Population

Cases in Passive Dataset

Additional Cases Estimated 2by Capture-Recapture

Total Estimated Cases from Passive Data

Total Cases Observed in Active Data

Cases with at least one in-patient ICD-9-CM code or at least two outpatient ICD-9-CM codes given in a facility in target counties

134

6

140

141