Table 2 Narrative typologies and supporting codes

Restitution Narrative (total)

4

10

 Healthy, sick, with expectation that health would be restored

3

3

 Acceptance of a new normal inclusive of the illness/disorder

1

7

Chaos Narrative (total)

20

20

 Disorganization in description of illness and/or symptoms

14

2

 Suffering and loss

19

9

 Fear and uncertainty/difficulty making future plans

9

16

 Searching for legitimacy

7

1

Quest Narrative (total)

1

17

 Focus on the positive attributes of self/child/family

16

 Individual/parent taking control and advocating/identification of new strengths

14

 Hope that something will be gained for others

1