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Table 2 Patient characteristics (n = 63)

From: Developing and evaluating rare disease educational materials co-created by expert clinicians and patients: the paradigm of congenital hypogonadotropic hypogonadism

Sex n (%)
 Male 42 (67%)
 Female 21 (33%)
Age  
 18–29 13 (21%)
 30–39 24 (38%)
 40–49 17 (27%)
 50–59 5 (8%)
 60+ 4 (6%)
Children  
 None 42 (66%)
 Biologic children 14 (22%)
 Adopted children 7 (11%)
Education level  
 High school/vocational 17 (27%)
 University 25 (40%)
 Post-Graduate 21 (33%)
Health literacya  
 Adequate 52 (83%)
 Inadequate 11 (17%)
 Health experiences  
 Seen at academic center 39 (62%)
 Had genetic testing 36 (57%)
 Received genetic counseling 12 (19%)
  1. ahealth literacy as assessed by [16, 17]