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Table 2 Patient characteristics (n = 63)

From: Developing and evaluating rare disease educational materials co-created by expert clinicians and patients: the paradigm of congenital hypogonadotropic hypogonadism

Sex

n (%)

 Male

42 (67%)

 Female

21 (33%)

Age

 

 18–29

13 (21%)

 30–39

24 (38%)

 40–49

17 (27%)

 50–59

5 (8%)

 60+

4 (6%)

Children

 

 None

42 (66%)

 Biologic children

14 (22%)

 Adopted children

7 (11%)

Education level

 

 High school/vocational

17 (27%)

 University

25 (40%)

 Post-Graduate

21 (33%)

Health literacya

 

 Adequate

52 (83%)

 Inadequate

11 (17%)

 Health experiences

 

 Seen at academic center

39 (62%)

 Had genetic testing

36 (57%)

 Received genetic counseling

12 (19%)

  1. ahealth literacy as assessed by [16, 17]