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Fig. 4 | Orphanet Journal of Rare Diseases

Fig. 4

From: An innovative and collaborative partnership between patients with rare disease and industry-supported registries: the Global aHUS Registry

Fig. 4

Responses to aHUS Alliance 2016 survey question on how to encourage patient participation in research. Patients were asked “In your opinion, what would encourage greater patient participation in research studies or clinical trials?”. Responses were fixed (no free text option) and more than one option could be selected. This question was only included in the 2016 survey

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172