Table 1 Characteristics of 104 patients completing the questionnaire

women / men

57 / 47

mean age (years)

44 (SD 19.8; range 5 - 80)

mean age women (years)

44 (SD 19.8; range 13 - 80)

mean age men (years)

41 (SD 19.7; range 5 – 72))

age groups

≤10 years

3

11 – 20 years

12

21 – 30 years

17

31 – 40 years

14

41 – 50 years

18

51-60 years

21

≥60 years

19

symptom onset

mean age symptom onset

11 (SD 8.2)

mean age symptom onset women

12 (SD 7.6)

mean age symptom onset men

9 (SD 9.2)

delay of diagnosis^a

14 (SD 10.9)

delay of diagnosis^a women

n = 37: 14 (SD 10.3)

delay of diagnosis^a men

n = 21: 14 (SD 12.3)

HAE variants

Type I

102

Type II

2