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Table 6 Behavioural Characteristics in 101 PTHS Individuals

From: Phenotype and natural history in 101 individuals with Pitt-Hopkins syndrome through an internet questionnaire system

Behaviour Percent
Unusual behaviour during feeding 40.4 %
Sleep problems No longer periods of sleep/frequently awake at night 4.4 %
Other sleep problems 4.4 %
Problems falling asleep Previously 12.1 %
Currently 17.6 %
Problems sleeping the whole night through Previously 13.6 %
Currently 33.0 %
Night terrors Previously 6.6 %
Currently 5.5 %
Hand biting Previously 11.4 %
Currently 58.0 %
Mean age of start 4.2 years (range 0–23 years)
Teeth grinding Previously 28.9 %
Currently 46.7 %
Mean age of start 2.8 years (range 0–12 years)
Clapping/flashing/hand washing Previously 9.0 %
Currently 80.9 %
Mean age of start 1.7 years (range 0–15 years)
Repetitive movements Previously 4.4 %
Currently 66.7 %
Mean age of start 3.3 years (range 0.2–12 years)