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Table 1 Characteristics of the survey response group

From: Survey of healthcare experiences of Australian adults living with rare diseases

  Number of people % of Response
Sex (n = 744)   
 Female 568 76.3
 Male 176 23.7
Age groups (n = 234)   
 18–34 years 61 26.1
 35–64 years 129 55.1
 65 years and over 44 18.8
State of residence (n = 741)   
 New South Wales 212 28.6
 Victoria 182 24.6
 Queensland 159 21.5
 Western Australia 92 12.4
 South Australia 44 5.9
 Australian Capital Territory 25 3.4
 Tasmania 23 3.1
 Northern Territory 4 0.5
Role of person answering the survey (n = 741)   
 A paid support worker 6 0.8
 A person living with a rare disease. 661 89.2
 A relative/carer of a person with a rare disease 74 10.0
 Other 0 0
Number of rare diseases per person (n = 746)   
 1 628 84.2
 2 93 12.5
 3 21 2.8
 4 4 0.5
Self-reported health status (n = 743)   
 Excellent 25 3.4
 Very good 113 15.2
 Good 211 28.4
 Fair 256 34.5
 Poor 138 18.6