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Table 3 Proportions of unmet needs among participants

From: Unmet needs for healthcare and social support services in patients with Huntington’s disease: a cross-sectional population-based study

   

Complete sample (N = 86)

Stage I (n = 12)

Stage II (n = 23)

Stage III (n = 19)

Stage IV (n = 15)

Stage V (n = 17)

 

Variable

  

n (%)

n (%)

n (%)

n (%)

n (%)

n (%)

P-value (2 sided)

NPCSa total score

 

Met needs

6 (7)

1 (8)

2 (9)

0 (0)

1 (7)

2 (12)

0.723*

Unmet needs

79 (92)

11 (92)

21 (91)

18 (95)

14 (93)

15 (88)

Domain score Health and Personal care

 

Met needs

15 (17)

3 (25)

5 (22)

1 (5)

2 (13)

4 (23.5)

0.502*

Unmet needs

71 (83)

9 (75)

18 (78)

18 (95)

13 (87)

13 (76.5)

Subscale

Healthcare

Met needs

59 (69)

10 (83)

18 (78)

11 (58)

9 (60)

11 (65)

0.426*

Unmet needs

27 (31)

2 (17)

5 (22)

8 (42)

6 (40)

6 (35)

Personal Care

Met needs

35 (52)

12 (100)

16 (70)

5 (26)

5 (33)

7 (41)

0.001

Unmet needs

41 (48)

0 (0)

7 (30)

14 (74)

10 (67)

10 (59)

Rehabilitation

Met needs

22 (26)

4 (33)

6 (26)

1 (5)

6 (40)

5 (29)

0.180*

Unmet needs

64 (74)

8 (67)

17 (74)

18 (95)

9 (60)

12 (71)

Domaina score Social Care and Support

 

Met needs

17 (20)

5 (42)

4 (17)

0 (0)

4 (27)

4 (23.5)

0.070*

Unmet needs

68 (79)

7 (58)

19 (83)

18 (95)

11 (73)

13 (76.5)

Subscale

Social and family supporta

Met needs

28 (33)

6 (50)

6 (26)

2 (10.5)

6 (40)

8 (47)

0.098*

Unmet needs

57 (66)

6 (50)

17 (74)

16 (84)

9 (60)

9 (63)

Specialist equipment

Met needs

45 (52)

8 (67)

13 (56.5)

6 (32)

9 (60)

9 (53)

0.310

Unmet needs

41 (48)

4 (33)

10 (43.5)

13 (68)

6 (40)

8 (47)

Accommodation

Met needs

59 (69)

12 (100)

20 (87)

12 (63)

8 (53)

7 (41)

0.002*

Unmet needs

27 (31)

0 (0)

3 (13)

7 (37)

7 (47)

10 (59)

  1. NPCS Needs and Provision Complexity Scale; Chi-square test for categorical variables was used; *Five or less cells have expected count less than five. amissing data (1 missing NPCS total score, disease stage III; 1 missing domain score social care and support, disease stage III; 1 missing subscale social and family support, disease stage III)