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Figure 1 | Orphanet Journal of Rare Diseases

Figure 1

From: Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients’ and parents’ quality of life: the phenylketonuria – quality of life (PKU-QOL) questionnaires

Figure 1

Conceptual model of the impact of phenylketonuria (PKU) and its treatment on patients and their parents. From the patients’ perspective, PKU can have an impact on health status, psychological function, family life and social function. PKU treatment was also reported as having either a negative impact or no impact (patients who indicated that they did not know any other way of living and had coped with their disease).

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172