Table 1 Contributing EGA member organisations
Country | Organisation | Scope |
|---|---|---|
Austria | Österreichische Gaucher Gesellschaft/Austrian Gauchers Association | Gaucher disease |
Belgium | Belgische Organisatie voor Kinderen en Volwassesn met en Stofwisselingsziekte/Belgian Association for Metabolic Diseases | Metabolic diseases |
Bosnia & Herzegovina | Udruženje oboljelih od rijetkih bolesti u Bosni i Hercegovini/Association of people with rare diseases in Bosnia & Herzegovina | Rare diseases |
Bulgaria |
| Gaucher disease |
Canada | National Gaucher Foundation of Canada | Gaucher disease |
Czech Republic | Občanské sdružení rodičů dětí a dospělých postižených Gaucherovou chorobou/Czech Gaucher Association | Gaucher disease |
Denmark | Gaucher Foreningen i Danmark/Gaucher Association Denmark | Gaucher disease |
Estonia | Gaucher Eesti MTÜ/Estonian Gaucher Association | Gaucher disease |
Finland | Suomen Gaucher Yhdistys/Finnish Gaucher Association | Gaucher disease |
Germany | Gaucher Gesellschaft Deutschland/German Gaucher Association | Gaucher disease |
Greece | Πανελλήνιος Σύλλογος Ασθενών & Φίλων Πασχόντων από λυσοσωμικά Νοσήματα ‘Η Αλληλεγγύη’/Patients and friends of those suffering from lysosomal storage disorders `The Solidarity’ | LSDs |
Israel | Israeli Gaucher Association/ | Gaucher disease |
Italy | Associazione Italiana Gaucher/Italian Gaucher Association | Gaucher disease |
Jordan | Jordanian Gaucher Association/ | Gaucher disease |
Latvia | Reto slimību biedrība “Caladrius”/Society of Rare Diseases Caladrius | Rare diseases |
Lithuania | Lietuvos Gošė Asociacija/Lithuania Gaucher Association | Gaucher disease |
Macedonia | Здружение на граѓани за ретки болести “Живот со Предизвици” – Битола/Association of citizens for rare diseases - Life with Challenges | Rare diseases |
Mexico | Asociacion Gaucher de Mexico/Gaucher Association of Mexico | Gaucher disease |
Mexico | Proyecto Pide un Deseo México, i.a.p./Make a Wish Project | LSDs |
The Netherlands | VKS - Diagnosegroep Gaucher/Gaucher Diagnosis Group | Metabolic diseases |
Norway | Gaucher Foreningen Norge/Gaucher Association Norway | Gaucher disease |
Poland | Stowarzyszenie Rodzin z Chorobą Gauchera/Association of Families with Gaucher disease | Gaucher disease |
Romania | Fundatia Romana Pentru Bolile Lizozomale/Romanian Foundation for Lysosomal Diseases | LSDs |
Russia |
| Gaucher disease |
Serbia | Udruženje gradjana za pomoć u lečenju obolelih od Gošeove bolesti (UGOŠ)/Association for help in treatment of patients suffering from Gaucher’s disease | Gaucher disease |
Slovenia | Društvo bolnikov z gaucherjevo boleznijo Slovenije/Slovenian Gaucher Association | Gaucher disease |
South Africa | The Gaucher and LSD Society of South Africa | Gaucher disease/LSDs |
Spain | Asociación Española de Enfermos y Familiares de la Enfermedad de Gaucher/Spanish association of Gaucher patients and their relatives | Gaucher disease |
Sweden | Morbus Gaucherföreningen i Sverige/Swedish Gaucher Disease Association | Gaucher disease |
Switzerland | Vaincre les Maladies Lysosomales - Suisse/Swiss Association for Overcoming Lysosomal Storage Disorders | LSDs |
UK & Republic of Ireland (RoI) | The Gauchers Association | Gaucher disease |
Ukraine |
| Gaucher disease |
USA | National Gaucher Foundation | Gaucher disease |
/ National Association of Gaucher patients in Bulgaria
/Interregional non-government organization “Assistance to invalids suffering from Gaucher disease and their families”
/All-Ukrainian Gaucher Association