|
Proportion of respondents (%)
|
940/2836 (33 %)
|
|
Mean age ± SD at time of survey
|
54.1 ± 14.1 years
|
|
Mean age ± SD at time of diagnosis
|
37.1 ± 15.5 years
|
|
Proportion of females (%)
|
630/940 (67 %)
|
|
Proportion of North Americans
|
738/940 (79 %)
|
|
Proportion of patients with recurrent epistaxis (%)
|
807/940 (86 %)
|
|
Proportion of patients with ENT consult prior to HHT diagnosis (%)
|
349/940 (37 %)
|
|
Proportion of patients with ER consult prior to HHT diagnosis (%)
|
154/940 (16 %)
|
|
Mean age ± SD at first ENT consult
|
27.8 ± 16.8 years
|
|
Mean age ± SD at first ER consult
|
30.1 ± 17.4 years
|
|
Mean interval of time ± SD from initial ENT consult to HHT diagnosis
|
13.9 ± 12.2 years
|
|
Mean interval of time ± SD from initial ER consult to HHT diagnosis
|
11.3 ± 12.6 years
|
