Table 4 Preventive measures to reduce the onset of new lesions during daily life
From: Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa
Direct skin protection | • Protect vulnerable skin sites, (e.g. knees and elbows) with soft silicon contact layers, silicon sheets or strips (e.g. KerraPro®) or thick padding |
• Use gloves when the child begins to crawl/walk and lifelong during sports or hobbies (e.g. DermaSilk® or Tubifast®) | |
• Avoid hard shoes with internal seams, tight clothes and clothes with raised seams, tags in contact with the skin | |
• Use protective padding for shoes, such as a poron insole or orthotic device | |
• Pad the frame at the nose bridge and over the ears of eye glasses | |
Other measures | • Ensure that toys are frequently cleaned and in soft material without traumatic angles |
• Prefer hobbies and sports at low risk of skin trauma (e.g. adapted gym, swimming, ping-pong, reading, singing, playing music, electronic toys and informatics) | |
• House air conditioning and other cooling measures in hot climates |