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Table 2 Key facts : European Reference Networks (ERNs) for rare diseases

From: The European Union Committee of Experts on Rare Diseases: three productive years at the service of the rare disease community

Rare diseases cited in Directive on the application of patients’ rights in cross border healthcare (2011/24/EU) (9 March 2011) as priority area for ERNs
EUCERD Recommendations on European Reference Networks for Rare Diseases adopted on 31 January 2013
Consensus on 21 recommendations covering mission, vision and scope, governance, composition, funding and evaluation, and designation of ERNs for Rare Diseases