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Table 2 Key facts : European Reference Networks (ERNs) for rare diseases

From: The European Union Committee of Experts on Rare Diseases: three productive years at the service of the rare disease community

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Rare diseases cited in Directive on the application of patients’ rights in cross border healthcare (2011/24/EU) (9 March 2011) as priority area for ERNs

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EUCERD Recommendations on European Reference Networks for Rare Diseases adopted on 31 January 2013

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Consensus on 21 recommendations covering mission, vision and scope, governance, composition, funding and evaluation, and designation of ERNs for Rare Diseases

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Orphanet Journal of Rare Diseases

ISSN: 1750-1172