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Table 3 Self-reported data from the CDH survivors and their parents

From: Health-related quality of life and its determinants in children with a congenital diaphragmatic hernia

1. Children

CHD

LEA

Norms

Children’ QoL: Kidscreen-27 (0–100)*

M ± SD

Diff (95% CI) +

Diff (95% CI) ++

Physical well-being

53.4 ± 10.7

5,9 (1,7 ; 10,1)

−11,6 (−15,6 ; -7,63)

Psychological well-being

53.4 ± 9.5

2,3 (−1,5 ; 6,3)

−23,8 (−27,2 ; -20,3)

Parents and autonomy

47.3 ± 7.9

−0, (−5,4 ; 3,5)

−14,3 (−17,4 ; -11,1)

Peers and social support

44.5 ± 9.5

0,1 (−5,0 ; 5,3)

−16,3 (−19,8 ; -12,8)

School

53.5 ± 10.0

3,0 (−1,2 ; 7,3)

−13,2 (−17,0 ; -9,44)

Children’ behavioral : SDQ

M ± SD

  

Emotional symptoms

3.0 ± 2.7

-

-

Conduct problems

2.5 ± 1.7

-

-

Hyperactivity

4.1 ± 2.4

-

-

Peer problems

1.6 ± 2.4

-

-

Prosocial

8.2 ± 1.5

-

-

Total difficulties

11.3 ± 5.7

-

-

2. Parents

   

Parents’ QoL: SF36 (0–100)*

M ± SD

  

Physical function

92.5 ± 13.2

-

-

Social functioning

86.7 ± 19.1

-

-

Role physical

89.9 ± 15.3

-

-

Role emotional

63.2 ± 9.1

-

-

Mental health

71.4 ± 14.2

-

-

Vitality

71.7 ± 17.0

-

-

Body pain

83.8 ± 22.5

-

-

General health

79.7 ± 17.3

-

-

Physical composite score

55.9 ± 6.1

-

-

Mental composite score

46.7 ± 5.6

-

-

  1. M±SD mean±standard deviation.
  2. * Higher score, higher QoL level.
  3. LEA long term leucemia survivors, norms, Kidscreen norms (sex- and gender- matched).
  4. + Diff (95% CI) CHD score – LEA score (95% confidence interval of difference); ++ Diff (95% CI), CHD score – norm score (95% confidence interval of difference).