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Table 1 Demographics and socioeconomic characteristics of participants with FRDA in the UK and Germany

From: Impact of Friedreich’s Ataxia on health-care resource utilization in the United Kingdom and Germany

  United Kingdom1 Germany2
Mean Age (years) ± SD 32 ± 18 28 ± 14
(Range 8-71) (Range 8-56)
n=74 n=28
Gender 36 (48%) Male 10 (36%) Male
39 (52%) Female 18 (64%) Female
n=75 n=28
Adults (aged >18 years) 50 (67%) 20 (71%)
Children (aged <18 years) 25 (33%) 8 (29%)
n=75 n=28
Mean age of symptom onset 14.1 years (±11.3 years) 11.3 years (± 6.1)
Range 2-63 years Range 4-28 years
n=72 n=26
Time from symptoms to first doctor visit 1.6 years (± 3.1 years) 2.0 years (± 3.1)
Range 0-19 years Range 0-10 years
n=63 n=27
Time from first doctor visit for symptoms to diagnosis 2.7 years (± 3.7 years) 1.9 years (± 2.3)
Range 0-20 years Range 0-8 years
n=66 n=28
Living with their parents 40 (53%) 17 (61%)
n=75 n=28
In primary/secondary/higher education 26 (35%) 11(34%)
n=74 n=32*
Employment status (% employed full time) 5 (7%) 4 (13%)
n=74 n=32*
Unemployed due to FRDA 22 (30%) 8 (25%)
n=74 n=32*
  1. 1Source UK – PCIF.
  2. 2Source Germany – PCIF.
  3. *Multiple responses.