Table 1 Demographics and socioeconomic characteristics of participants with FRDA in the UK and Germany
From: Impact of Friedreich’s Ataxia on health-care resource utilization in the United Kingdom and Germany
United Kingdom1 | Germany2 | |
|---|---|---|
Mean Age (years) ± SD | 32 ± 18 | 28 ± 14 |
(Range 8-71) | (Range 8-56) | |
n=74 | n=28 | |
Gender | 36 (48%) Male | 10 (36%) Male |
39 (52%) Female | 18 (64%) Female | |
n=75 | n=28 | |
Adults (aged >18 years) | 50 (67%) | 20 (71%) |
Children (aged <18 years) | 25 (33%) | 8 (29%) |
n=75 | n=28 | |
Mean age of symptom onset | 14.1 years (±11.3 years) | 11.3 years (± 6.1) |
Range 2-63 years | Range 4-28 years | |
n=72 | n=26 | |
Time from symptoms to first doctor visit | 1.6 years (± 3.1 years) | 2.0 years (± 3.1) |
Range 0-19 years | Range 0-10 years | |
n=63 | n=27 | |
Time from first doctor visit for symptoms to diagnosis | 2.7 years (± 3.7 years) | 1.9 years (± 2.3) |
Range 0-20 years | Range 0-8 years | |
n=66 | n=28 | |
Living with their parents | 40 (53%) | 17 (61%) |
n=75 | n=28 | |
In primary/secondary/higher education | 26 (35%) | 11(34%) |
n=74 | n=32* | |
Employment status (% employed full time) | 5 (7%) | 4 (13%) |
n=74 | n=32* | |
Unemployed due to FRDA | 22 (30%) | 8 (25%) |
n=74 | n=32* |