Table 4 Demographics of DMD population represented in the CTSR
Country | Sites reporting DMD patients | DMD patients <18 | DMD patients 18+ | Total DMD patients | Avg <18 pats/DMD site | Avg 18+ pats/DMD site | Avg pats/DMD site | Sites reporting only DMD Pats <18 | Sites reporting only DMD Pats 18+ | Sites reporting patients both <18 and 18+ |
|---|---|---|---|---|---|---|---|---|---|---|
United States | 29 | 2177 | 600 | 2777 | 75 | 21 | 96 | 1 | 0 | 28 |
United Kingdom | 29 | 1213 | 301 | 1514 | 42 | 10 | 52 | 8 | 7 | 14 |
Germany | 46 | 887 | 240 | 1127 | 19 | 5 | 25 | 22 | 7 | 17 |
Italy | 15 | 557 | 238 | 795 | 37 | 16 | 53 | 4 | 0 | 11 |
Canada | 9 | 387 | 71 | 458 | 43 | 8 | 51 | 1 | 0 | 8 |
Australia | 3 | 407 | 19 | 426 | 136 | 6 | 142 | 1 | 0 | 2 |
France | 14 | 159 | 214 | 373 | 11 | 15 | 27 | 1 | 7 | 6 |
Countries reporting between 100–250 DMD patients* | 41 | 1798 | 442 | 2240 | 61 | 20 | 81 | 15 | 2 | 24 |
Countries reporting less than 100 DMD patients** | 22 | 599 | 78 | 677 | 27 | 3 | 30 | 10 | 0 | 12 |
Total | 208 | 8184 | 2203 | 10387 | 39 | 9 | 48 | 63 | 23 | 122 |