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Table 4 Demographics of DMD population represented in the CTSR

From: The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases

Country Sites reporting DMD patients DMD patients <18 DMD patients 18+ Total DMD patients Avg <18 pats/DMD site Avg 18+ pats/DMD site Avg pats/DMD site Sites reporting only DMD Pats <18 Sites reporting only DMD Pats 18+ Sites reporting patients both <18 and 18+
United States 29 2177 600 2777 75 21 96 1 0 28
United Kingdom 29 1213 301 1514 42 10 52 8 7 14
Germany 46 887 240 1127 19 5 25 22 7 17
Italy 15 557 238 795 37 16 53 4 0 11
Canada 9 387 71 458 43 8 51 1 0 8
Australia 3 407 19 426 136 6 142 1 0 2
France 14 159 214 373 11 15 27 1 7 6
Countries reporting between 100–250 DMD patients* 41 1798 442 2240 61 20 81 15 2 24
Countries reporting less than 100 DMD patients** 22 599 78 677 27 3 30 10 0 12
Total 208 8184 2203 10387 39 9 48 63 23 122
  1. *Belgium, Czech Republic, Denmark, Hungary, India, Israel, Japan, Netherlands, Poland, Russia, Spain, Switzerland, Turkey.
  2. **Austria, Brazil, Bulgaria, Chile, China, Croatia, Finland, Indonesia, Moldova, Norway, Pakistan, Portugal, Romania, Serbia, Slovenia, Sweden, Ukraine.