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Table 2 CTSR site distribution by country, by total number of patients per country

From: The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases

Country

Sites

Total NMD patients

Avg # patients per site

Total DMD patients

United States

38

7495

197

2777

United Kingdom

41

5765

141

1514

Italy

19

4408

232

795

Germany

60

3909

65

1127

France

20

2206

110

373

Denmark

3

1356

452

186

Canada

10

1008

101

458

Belgium

3

875

292

219

Japan

3

784

261

230

Australia

8

764

96

426

Russia

4

737

184

206

Netherlands

6

691

115

152

Poland

4

628

157

166

Turkey

3

620

207

215

Spain

6

529

88

102

Countries reporting 100–500 NM patients*

36

3130

36

1171

Countries reporting <100 NM patients**

21

590

21

270

Totals

285

35495

125

10387

  1. *Austria, Brazil, Bulgaria, China, Czech Republic, Hungary, India, Israel, Serbia, Sweden, Switzerland, Ukraine.
  2. **Algeria, Argentina, Chile, Croatia, Finland, Indonesia, Lithuania, Macedonia, Moldova, New Zealand, Norway, Pakistan, Portugal, Romania, Slovenia.