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Table 2 CTSR site distribution by country, by total number of patients per country

From: The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases

Country Sites Total NMD patients Avg # patients per site Total DMD patients
United States 38 7495 197 2777
United Kingdom 41 5765 141 1514
Italy 19 4408 232 795
Germany 60 3909 65 1127
France 20 2206 110 373
Denmark 3 1356 452 186
Canada 10 1008 101 458
Belgium 3 875 292 219
Japan 3 784 261 230
Australia 8 764 96 426
Russia 4 737 184 206
Netherlands 6 691 115 152
Poland 4 628 157 166
Turkey 3 620 207 215
Spain 6 529 88 102
Countries reporting 100–500 NM patients* 36 3130 36 1171
Countries reporting <100 NM patients** 21 590 21 270
Totals 285 35495 125 10387
  1. *Austria, Brazil, Bulgaria, China, Czech Republic, Hungary, India, Israel, Serbia, Sweden, Switzerland, Ukraine.
  2. **Algeria, Argentina, Chile, Croatia, Finland, Indonesia, Lithuania, Macedonia, Moldova, New Zealand, Norway, Pakistan, Portugal, Romania, Slovenia.