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Table 2 Demographics and baseline characteristics of patients* enrolled (at Dec 31st, 2012)

From: Methodological challenges in monitoring new treatments for rare diseases: lessons from the cryopyrin-associated periodic syndrome registry

Variable n (%)

FCAS N = 35

MWS N = 144

NOMID N = 23

Others** N = 31

Gender

    

Male

12 (34.3)

74 (51.4)

11 (47.8)

15 (48.4)

Female

23 (65.7)

70 (48.6)

12 (52.2)

16 (51.6)

Age

    

< 4 years

0

2 (1.4)

0

2 (6.5)

4 - <18 years

7 (20)

35 (24.3)

14 (60.9)

17 (54.8)

≥ 18 years

28 (80)

107 (74.3)

9 (39.1)

12 (38.7)

  1. * Information about indication is missing for 8 patients.
  2. ** Others include atypical CAPS, SJIA, FMF and other autoinflammatory diseases.