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Table 2 Composite disability scores

From: Disease and patient characteristics in NP-C patients: findings from an international disease registry

Patient group n Mean (SD) 95% CI of mean Median (range)
All patients with available scores 146 0.39 (0.28) 0.35, 0.44 0.35 (0–1.00)
Age at neurological onset*:
Early infantile (<2 yrs) 14 0.40 (0.35) 0.19, 0.60 0.42 (0–1.00)
Late infantile (2 – <6 yrs) 42 0.41 (0.30) 0.32, 0.51 0.35 (0–1.00)
Juvenile (6 – <15 yrs) 41 0.47 (0.24) 0.39, 0.55 0.44 (0–0.88)
Adolescent/adult (≥15 yrs) 33 0.35 (0.20) 0.28, 0.43 0.29 (0.06–0.94)
  1. *Age at neurological onset not available for 16 patients.