Table 1 Assessment matrix of the skills of children with ichthyosis after a therapeutic education session

Knows how to communicate about his illness

I can tell my doctor that I did not understand what he said.

I can tell my doctor that I've had enough of the cream.

Facilitate his integration in school

I cannot paint the same way my friends do.

If in school, they mock me, I can tell an adult.

If my parents and my doctor agree, I have the right to go on a trip organized by the school.

Knowledge about his treatment

I must put some moisturizer on once a day.

The cream is used to moisturize my skin.

Fucidine®(fusidic acid) is a moisturizing cream.

There is nothing to do about the itching.

Knowledge about his disease

Ichthyosis can affect the skin of my whole body.

My disease also concerns my eyes and ears.

I can't transmit my disease by touching my friends.

Ichthyosis is a genetic disease.

Knowledge about the analgesic treatments

EMONO - Kalinox® is an inhalable drug used to reduce pain.

It is necessary to wait for very strong pain before taking a painkiller.

It's normal to suffer pain because I'm sick.

If the analgesic treatment is ineffective, I can increase the dose myself.