Skip to main content

Table 1 Patient characteristics

From: The impact of Hunter syndrome (mucopolysaccharidosis type II) on health-related quality of life

  Mean SD Median Min Max % Missing
All patients (N = 96)
Age (yrs) 14.2 6.7 13.6 5.0 30.9 0.0
Age at diagnosis (yrs) 4.3 3.7 3.0 0.0 20.0 2.1
Duration of MPS II (yrs) 9.8 6.8 8.5 0.3 26.0 2.1
Height (cm) 127.8 14.8 126.5 99.06 170.0 12.5
Weight (kg) 35.9 13.2 32.7 19.0 78.0 7.3
6MWT (m) 400.3 100.3 407.5 37.0 588.0 2.1
% predicted FVC 56.2 14.9 54.8 16.0 90.8 2.1
Global JROM score (%) 67.3 9.1 67.8 43.4 87.2 1.0
Patients above 12 years old who completed self-report questionnaires (N = 53)
Age (yrs) 19.2 4.8 18.7 12.1 30.9 0.0
Age at diagnosis (yrs) 5.5 4.5 4.0 0.0 20.0 3.8
Duration of MPS II (yrs) 13.6 6.9 12.6 0.5 26.0 3.8
Height (cm) 135.1 13.8 132.5 109.2 170.0 11.3
Weight (kg) 43.6 12.9 38.8 26.8 78.0 9.4
6MWT (m) 377.9 116.5 395.0 37.0 588.0 1.9
% predicted FVC 50.1 13.1 50.0 16.0 79.2 1.9
Global JROM score (%) 62.4 7.4 62.8 43.4 82.3 1.9