PHARE-M: Quality Improvement Program for Cystic Fibrosis Care in France

Strategies for care quality improvement in Cystic Fibrosis

Authors: Gilles Rault and Pierre Lombrail

Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative

Between 2002 and 2006 France launched a national cystic fibrois (CF) newborn screening program; organized a network of specialized CF care centers; and issued CF diagnostic and treatment standards. To continue...

Authors: Kathryn A. Sabadosa, Marjorie M. Godfrey and Bruce C. Marshall

Introduction of a collaborative quality improvement program in the French cystic fibrosis network: the PHARE-M initiative

An agreement, signed in 2007 by the 49 French Cystic Fibrosis Centers, included a commitment to participate, within the next 5 years, in a care quality assessment and improvement program (QIP). The objective w...

Authors: Dominique Pougheon Bertrand, Guy Minguet, Pierre Lombrail and Gilles Rault

A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany

The Cystic Fibrosis (CF) center in Roscoff (Brittany) has been involved in therapeutic education programs (TEP) since 2006 and took part in the pilot phase of the French quality improvement program (QIP) since...

Authors: Krista Revert, Laurence Audran, Jocelyne Pengam, Pascal Lesne and Dominique Pougheon Bertrand

A quality improvement program for adolescents with cystic fibrosis: focus on psychosocial skills

The two pediatric cystic fibrosis centers (CFCs) in Paris (Robert Debré) and Nantes, France, have been developing therapeutic patient education (TPE) programs since 2006 and have been engaged in the pilot phas...

Authors: Michele Gérardin, Anne Pesle, Dominique Pougheon-Bertrand, Pilar Léger, Céline Vallet, Tiphaine Bihouee and Valérie David

A quality improvement program to reduce the time on the lung transplant waiting list at the Nantes University Hospital

In 2010, the time on the lung transplant waiting list in Nantes University Hospital (NUH) was 9.2 months, compared to a French national median of about 4 months. The NUH transplant unit performs both heart and...

Authors: Isabelle Danner-Boucher, Véronique Loppinet, Aurore Boxus, Claire Dary, Anne Brigitte Lambert, Marine Prieur, Céline Vallet and Adrien Tissot

Quality of care in cystic fibrosis: assessment protocol of the French QIP PHARE-M

The PHARE-M care quality improvement program, modeled on the US Cystic Fibrosis Quality Improvement Program, was introduced at 14 cystic fibrosis centers (CFCs) in the French Cystic Fibrosis Network between 20...

Authors: Dominique Pougheon Bertrand, Emmanuel Nowak, Clémence Dehillotte, Lydie Lemmonier and Gilles Rault

Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry

The French Cystic Fibrosis Registry takes a census of the population of patients and records their annual data transmitted by Cystic Fibrosis Centers (CFCs). Quality of patient data has been a focus in the pas...

Authors: Nadine Pellen, Laëtitia Guéganton, Dominique Pougheon Bertrand and Gilles Rault

Lessons from patient and parent involvement (P&PI) in a quality improvement program in cystic fibrosis care in France

Quality Improvement Programs (QIP) in cystic fibrosis (CF) care have emerged as strategies to reduce variability of care and of patient outcomes among centres facilitating the implementation of Best Practices ...

Authors: Dominique Pougheon Bertrand, Guy Minguet, Rémi Gagnayre and Pierre Lombrail