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Table 4 Challenges associated with undergoing MRI procedures

From: The experience of living with Niemann–Pick type C: a patient and caregiver perspective

Patient (age at diagnosis)

Potential difficulties undergoing MRI

18 (7)

Requires someone in the scanning room

2 (10)

Requested someone in the scanning room

17 (10)

Cannot lie still, would need sedation

12 (10)

Anxiety, possibly needing sedation

19 (14)

No

1 (14)

No

3 (22)

Potentially shortened scan, involuntary movements

13 (24)

No

16 (25)

Might need music or a movie

4 (27)

No

10 (28)

No

11a (29)

Did not pose difficulties in the past

6 (30)

No

15 (30)

Claustrophobia

9 (30)

No

14 (36)

Involuntary movements

7 (39)

No

8 (46)

No

5 (59)

No

  1. Sorted based on age of diagnosis, in ascending order
  2. aPatient deceased