From: The experience of living with Niemann–Pick type C: a patient and caregiver perspective
Patient (age at diagnosis) | Logistical difficulties related to study participation |
---|---|
18 (7) | Caregivers unable to travel |
2 (10) | No |
17 (10) | Travel difficulties with medical equipment |
12 (14) | No |
19 (14) | No |
1 (14) | No |
3 (22) | No |
13 (24) | No |
16 (25) | No |
4 (27) | No |
10 (28) | No |
11a (29) | Travel difficulties |
6 (30) | No |
15 (30) | Caregiver requested transportation and lodging to be organized |
9 (30) | No |
14 (36) | Caregiver requested transportation and lodging to be organized |
7 (39) | No |
8 (46) | Caregiver requested more financial compensation |
5 (59) | No |