Table 4 Ongoing gastrointestinal (GI) symptoms among surgical participants 1 year post operation in IMPOWERa
Characteristic, n(%) | Pediatric registrantsbc (n = 107) | Adult registrants diagnosed after 20 years of age (n = 45) |
|---|---|---|
GI symptoms reported 1 year following surgical procedure | ||
Yes | 67 (62.6) | 37 (82.2) |
No | 38 (35.5) | 7 (15.6) |
Type of GI symptoms 1 year following surgical procedure | ||
Vomiting | 39 (36.4) | 11 (24.4) |
Difficulty tolerating foods | 36 (33.6) | 19 (42.2) |
Reflux | 35 (32.7) | 9 (20.0) |
Abdominal pain | 34 (31.8) | 33 (73.3) |
Constipation | 30 (28.0) | 22 (48.9) |
Diarrhea | 28 (26.2) | 16 (35.6) |
Excessive spit up (baby) | 26 (24.3) | – |
Swollen abdomen | 26 (24.3) | 13 (28.9) |
Failure to thrive | 21 (19.6) | 5 (11.1) |
Other | 10 (9.3) | 11 (24.4) |
Severity of symptoms 1 year following surgical procedure | ||
More severe | 7 (6.5) | 10 (27.0) |
About the same severity | 9 (8.4) | 9 (24.3) |
Less severe | 37 (34.6) | 17 (46.0) |
Generally no symptoms prior to surgical procedure | 46 (43.0) | 1 (2.7) |
Frequency of symptoms 1 year following surgical procedure | ||
More frequent | 10 (9.3) | 13 (35.1) |
About the same frequency | 18 (16.8) | 8 (21.6) |
Less frequent | 25 (23.4) | 14 (37.8) |
Generally no symptoms prior to surgical procedure | 47 (43.9) | 1 (2.7) |
Specialist visits following surgical procedure | ||
Gastroenterologist | 74 (69.2) | 37 (82.2) |
Nutritionist/Dietician | 45 (42.1) | 16 (35.6) |
Physical therapist | 29 (27.1) | 5 (11.1) |
Occupational therapist | 27 (25.2) | – |
Speech pathologist | 25 (23.4) | – |
Feeding therapist | 22 (20.6) | – |
Lactation specialist | 17 (15.9) | – |
Allergist | 12 (11.2) | 2 (4.4) |
Other specialist | 19 (17.8) | 4 (8.9) |
Number of gastroenterologists seen following surgical procedure | ||
0 gastroenterologists | 33 (30.8) | 8 (17.8) |
1 gastroenterologist | 20 (18.7) | 10 (22.2) |
2 gastroenterologists | 27 (25.2) | 8 (17.8) |
3 gastroenterologists | 9 (8.4) | 3 (6.7) |
4 or more gastroenterologists | 18 (16.8) | 16 (35.6) |
Nonsurgical methods currently used to manage symptoms | ||
Medications | 28 (26.2) | 32 (71.1) |
Dietary changes | 27 (25.2) | 31 (68.9) |
Alternative medicine | 6 (5.6) | 10 (22.2) |
Physical therapy | 3 (2.8) | 10 (22.2) |
Other nonsurgical methods | 12 (11.2) | 3 (6.7) |