Characteristic | |
---|---|
Mean Age of person with DMD (SD) | 12.3 (6.1) |
Age range (minimum, maximum) | 3, 33 |
N | % | ||
---|---|---|---|
Participant Role within Lowes Lab Algorithm Characterization (n) | |||
Ambulatory | 20 | 33 | |
Minor patient with parent | 2 | ||
Parent of minor patient alone | 18 | ||
Transitional | 20 | 33 | |
Minor patient with parent | 2 | ||
Parent of minor patient alone | 17 | ||
Parent of adult patient alone | 1 | ||
Non-Ambulatory | 20 | 33 | |
Minor patient with parent | 4 | ||
Parent of minor patient alone | 7 | ||
Parent of adult patient alone | 4 | ||
Parent of adult patient together | 1 | ||
Adult patient alone | 4 | ||
Gender | |||
Patient Gender* (no. males) | 4 | 100 | |
Caregiver Gender* (n) | |||
Male | 11 | 18 | |
Female | 45 | 75 | |
DMD Patient Race (n) | |||
Black | 3 | 5 | |
White | 52 | 87 | |
Asian/Pacific Islander | 2 | 3 | |
Other | 3 | 5 | |
DMD Patient Hispanic Ethnicity (n) | |||
Yes | 2 | 3 | |
No | 58 | 97 | |
DMD Patient Level of Education (n) | |||
Preschool | 5 | 8 | |
Currently or Completed Elementary School | 35 | 58 | |
Currently or Completed Middle School | 9 | 15 | |
Currently or Completed High School | 4 | 7 | |
Some college | 3 | 5 | |
Technical (Vocational) degree | 1 | 2 | |
4-year University degree (Bachelors degree) | 3 | 5 | |
DMD Mother's Level of Education (n) | |||
High School or less | 15 | 25 | |
Some college | 15 | 25 | |
4-year University degree (Bachelors degree) | 23 | 38 | |
Masters degree | 6 | 10 | |
Doctoral degree | 1 | 2 | |
Own computer at home (no. yes) | 59 | 98 | |
Car or van at home (no. yes) | 56 | 93 | |
Option of free lunch at school (no. yes) | 20 | 33 | |
Own or rent home (no. own) | 42 | 70 | |
Clinical Characteristics | |||
Use of Long-Term Steroids (n) | |||
Never | 9 | 15 | |
Used in the Past | 6 | 10 | |
Currently Use | 45 | 75 | |
Participation in Clinical Trials (n) | |||
Never | 32 | 53 | |
Participated in the Past | 14 | 23 | |
Currently Participate | 14 | 23 |